Forum medizinische Register Schweiz

Kurzbeschreibung

Approx.1% of the Swiss population is affected by a clinical disease known as rheumatoid Arthritis (RA), making it the most common inflammatory rheumatism. Heredity plays an important role in the development of the disease. In fact, a person with a close relative with an autoimmune disease is 3 to 6 times more likely to be affected. This genetic predisposition is reinforced by certain environmental factors, such as tobacco consumption or certain eating behaviors. Interestingly, RA starts years before the first clinical symptoms appear. The SCREEN-RA focusses on an at risk population for RA, namely first degree relatives of patients with an autoimmune disease. Participants are seen initially to exclude an active rheumatic disease, answer various questionnaires and provide biologic samples (serum, DNA, RNA…). Thereafter, participants are followed annually, either only per email or in person. The primary outcome is the development of incident arthritis or full-fledged classifiable RA.

Fachrichtung

Nuklearmedizin,  Rheumatologie

Registertyp

Epidemiologisch

Datenarten

Soziodemographie,  Krankheit/ Diagnose,  Intervention/Therapie,  Risiken/ Gesundheitsrelevante Bedingungen

Status

Aktiv, seit 2009

Population

Patienten mit einem erhöhten Risiko an Polyarthritis oder einer Autoimmunerkrankung zu erkranken.

Periodizität

Periodisch, 1 an

Geografische Abdeckung

National, Tessin, Bergregionen

Trägerschaft

Spitäler,  Universitäten

Finanzierung

Gemischt

Betreiberinstitution

HUG
Finckh // 26 Avenue Beau-Séjour
1211 Genève 14

Kontaktperson	Axel Finckh
E-Mail:	axel.finckh
Tel.	+41 22 372 36 76

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